In 2008, the Clumber world was delighted to see the culmination of many years planning and the formation of a central foundation for the health and research into the health of the Clumber
http://www.clumberhealth.org/
Has all the information, current, past, and future research projects, and how you can help.
I urge you as a Clumber lover to support the CSFH, its projects, and its fundraising; the foundation is set up in the USA but does appreciate and consult and involve Clumbers from around the globe
Cheers